Just need to vent - am so frustrated and tired
I've been having increasing left abdominal pain since last August, have lost 24 lbs in the past 4 weeks unintentionally, and started having night sweats a few weeks ago. I now have to sleep with two towels and they are often completely soaked halfway through the night. I am fatigued all day long, and just generally feel weakened.
I've been with Kaiser for 8 years. Every single time I was told to go to the ER in the past ended up with me paying the $350 copay and then being sent home because it's not an emergency. I am really hesitant to go to the ER for diagnostics.
I saw my OBGYN two weeks ago for a follow-up. He reviewed my ultrasounds and MRI of the uterus/ovaries, and did an examination and a second transvaginal ultrasound. He said the pain was likely not coming from my fibroid (I've had it for over 20 years and it hasn't changed in size). He recommended I get referred to gastroenterology and said he would reach out to my PCP to coordinate care. That never happened.
This past Wednesday, the pain became unbearable. I called the advice nurse and they got me a next-day appointment with my PCP. She refused to provide a referral to gastroenterology, saying, "If you think it's actually that serious, you should go to the ER." She said that I likely pulled a muscle and that it's very normal for people to lose 24 pounds in a month when their ribs are sore.
I've torn my Achilles tendon and two ligaments before. I had weekly gallstone attacks for nearly two years. I know what severe pain feels like versus a muscle strain. It was so frustrating to hear her tell me over and over again my pain can't be that bad.
When I said the OBGYN recommended I see gastroenterology, she accused me of lying, saying, "No, if that was the case, they would have put it in the notes, but they didn't," and, "Are you sure that wasn't a different doctor for another issue?" I wanted to pull my hair out at that point. It was sooo frustrating!
I kept pushing and she ended up ordering an abdominal CT and labs STAT, which I did on Thursday. She has not reviewed the results and has not been reachable since.
I showed my lab results to an OBGYN friend, and she recommended I file an expedited grievance and get a new PCP right away. There are certain types of immature white blood cells that shouldn't be in the blood, and she said if I were her patient she would suspect an infection or bone marrow issue. She is pretty worried about my other symptoms. I'm really worried as well.
It's 3:50am and I haven't been able to sleep all night due to the pain, which launches me periodically into crying spells. I'm just so tired. I wish I didn't have to push and beg every step of the way to get care.
Thanks for reading this rant. I just really needed to vent to people who understand how frustrating navigating healthcare can be.